In line with the short-term real-life study, as well as the approval and follow-up trials [ 6 , 15 , 16 ], the ER-formulation in our study was comparable to the IR-formulation in maintaining the WBC cystine levels in patients with cystinosis, with a slight trend towards a lower percent of cystine levels < 1 nmol during the ER-treatment.
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The effects of transitioning from immediate release to extended release cysteamine therapy in Norwegian patients with nephropathic cystinosis: a retrospective study.
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