When assessing risk, respondents felt it was important to address the risks that may be significant (i.e. increased pain or side effects), prior to participation in research. “they were already worried about the procedure [...] because they didn’t want their father to have pain or discomfort or [...] risk[s] simply for [...] research purposes.” (Interviewee 2) Moreover, some recognized that patients are emotionally drained and overwhelmed.
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Recruiting terminally ill patients into non-therapeutic oncology studies: views of health professionals.
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