Managing misaligned paternity findings in research including sickle cell disease screening in Kenya: 'consulting communities' to inform policy.

Consulting people who will be affected by research policies in this way is widely recognised as morally and practically important, particularly where there may be significant differences between researchers and those who participate in studies, for example, in their technical knowhow, wealth, culture and language ( Emanuel, Wendler, Killen, & Grady, 2004 ).

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