"I have SMA, SMA doesn't have me": a qualitative snapshot into the challenges, successes, and quality of life of adolescents and young adults with SMA.

Orphanet J Rare Dis · 2021 · PMC7898731 · PMID 33618755

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extremely significantno p-value reported

Achieving greater independence with treatment was considered to be extremely significant, and therefore, clinically meaningful to parents/caregivers as well as affected adults [ 8 , 14 ].

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