Evaluation of the Health-Related Quality of Life and Mental Health of Parents With Children and Adolescents With a Rare Disease Based on the Results of a Randomized Controlled Trial to Investigate a Family-Based Intervention and an Online Intervention for Affected Families (CARE-FAM-NET).

Fam Process · 2025 · PMC12081942 · PMID 40375458

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showed a trendno p-value reported

Analysis of HRQoL using the SF‐12 showed a trend toward improvement in the intervention groups compared with the TAU group, both on the physical and mental scales.

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