Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies.

Key Themes Widespread Conditional Support The included studies point to a clear trend that there was generally widespread—albeit conditional—support for uses of data in health research. 1 This is typically expressed in relation to a view that health research—or research more broadly—is “in the public interest” or is expected to bring about benefits for “the greater good”. 2 For example, one participant in study number 25 stated: “I think the medical research is going to be of general benefit to the general population and if my records can help; I think personally I would be quite willing to participate in any medical study that is of general benefit to the population.

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This is significant and indicates not only that more awareness raising is needed but also that there may be significant enthusiasm amongst the public to engage more directly with and in these forms of research.

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