approaching significancep = 0.09
In comparison, while adults with type II/III (combined subgroup) agreed it would lead to better support and allow informed decisions for future pregnancies, there was no general agreement that it would increase life expectancy, allow early enrollment on trials (although this was approaching significance; p = 0.09; Table 4 ), would make diagnosis easier to accept or would spare children the difficulties associated with a later diagnosis (Table 4 ).