Worse QOL also correlated with more severe EBS subtypes, though this association did not reach statistical significance (QOLEB score: 13.4 vs. 15.8 for respondents with localized EBS vs. intermediate or severe EBS subtypes, p = 0.29).
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A global, cross-sectional survey of patient-reported outcomes, disease burden, and quality of life in epidermolysis bullosa simplex.
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