Quality of life and mental health in the locked-in-state-differences between patients with amyotrophic lateral sclerosis and their next of kin.

There were no significant correlations between NOK’s self-rating and their external rating of patients’ QoL, but a statistical trend ( p > 0.10) for a positive correlation for the McGill-SIS (SeiQoL-DW: r = 0.19, p = 0.51; McGill-SIS: r = 0.48, p = 0.07).

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Although we did not find a similarly strong relationship between ratings in SeiQoL-DW and McGill for the NOK, there is a clear trend in the same direction, which needs to be interpreted with regard to the small sample size.

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